We’re thrilled to join forces with the Making Headway Podcast to spread awareness about brain aneurysms, amplify the voices of survivors, and delve into the impactful work of The Bee Foundation. Explore our partnership and stay updated on the latest episodes that showcase our mission to prevent brain aneurysms through awareness, advocacy, and research.
Recently, Erin and Christine were featured in an insightful episode that delved into TBF’s mission, goals, and the personal stories that fuel our commitment to brain aneurysm prevention. This episode is a must-listen for anyone who wants to learn more about our journey and how we’re making a difference.
Have you ever thought about how the doctors know what treatments to use to diagnose and treat your brain aneurysm? Research obviously creates this but where does the money come from? A major source of funding comes through public policy and the federal government. The Bee Foundation has a strong presence on Capitol Hill through their work with Arnold and Porter. They are currently working on getting Ellie’s Law passed which would be a bipartisan effort earmarking $50 million dollars to go towards research. This funding could prevent others from having a rupture and lead to new treatments and rehab options. Learn how to support passage of this bill here.
In this episode of the Making Headway podcast, Eryn and Alison welcome Erin Kreszl and Jaime Meltzer from The Bee Foundation, an organization dedicated to brain aneurysm prevention. Jaime shares her personal story of losing her sister to a brain aneurysm and how it propelled her into advocacy and support for others affected by similar tragedies. The conversation explores the impact of brain aneurysms on families, the importance of community support, and the need for awareness and research in this often-overlooked area of health. The episode emphasizes the significance of support groups and the healing power of sharing experiences with others who understand the pain of loss.
Women experience brain aneurysms at a higher rate than men. Are we alone in wondering what is behind this disparity? NO! This week, we welcome Rosalind Lai MD, a neurosurgeon performing research sponsored by a grant through The Bee Foundation. Dr. Lai and her team are trying to understand the role of the X chromosome in the development of cerebral aneurysms. Understanding this linkage could lead to the discovery of genetic markers for cerebral aneurysms and give insight into the gender differences we see in this condition. The hope would be that eventually we can test for genetic markers and provide treatments that turn down the expression of these genes which would lead to the prevention of brain aneurysms. Join Eryn, Alison, Rosalind and Erin Kreszl of The Bee Foundation (TBF) as we discuss TBF’s fourth pillar—research. Listen to learn more about brain aneurysms and this exciting research project!
On May 11, 2020 I had the opportunity to travel into my mind, understanding truths about myself I never knew. This was the day that I experienced a spontaneous perimesencephalic subarachnoid hemorrhage. I experienced changes in attention, cognition, memory, visual and auditory processing, depression and anxiety.
Through my experience with brain injury, I have been working on self-compassion–a process of self-exploration, acknowledgement and acceptance of myself. I have always had a heart for others but rarely a heart for myself. I have been blessed with an opportunity to address my inner struggles and deal with them in a healthy, affirmative way. I continue to seek ways to improve and grow. I am inspired and honored to be able to join you on my journey and share resources.
My brain injury has been transformative. If I can have a long-lasting impact on just one person (including myself), it will have all been worth it.
Before I suffered my perimesencephalic subarachnoid hemorrhage on 2/18/2023 I was leading a full, active life with my son in southern Maine. I was working as an RN Clinical Consultant. My son and I were active in many outdoor activities and busy enjoying a good life with friends and family.
After my PSAH, I suffered memory loss, brain fog, vision issues related to eye nerve damage, Dysautonomia, balance issues and debilitating chronic daily headaches. The loss of a very important relationship during my recovery also left me emotionally devastated and caused delay in my healing.
In hindsight, this was the catalyst I needed to find my own strength during my journey to recovery! I made a very deliberate and conscious choice to turn a horrific experience into a new life of self-discovery, grace and happiness. I’m looking forward to sharing my experiences and bringing hope and inspiration to others.
Join us in spreading the word and taking action. Whether you’re a survivor, a family member, or simply someone who wants to make a difference, your involvement matters. Check out our upcoming episodes and be part of a community that’s dedicated to making headway in the fight against brain aneurysms.
