At The Bee Foundation for Brain Aneurysm Prevention, advocacy is more than raising awareness, it is taking action that can lead to lifesaving change.
Every phone call, email, letter, and conversation with a member of Congress helps make brain aneurysm research a national priority. When advocates speak up together, elected officials hear that their constituents want better research, earlier detection, improved treatments, and ultimately, prevention.
Right now, one of the most important ways you can make a difference is by helping advance Ellie’s Law.
Ellie’s Law Could Change the Future of Brain Aneurysm Research
Ellie’s Law is a bipartisan, bicameral bill that would significantly increase federal investment in brain aneurysm research through the National Institute of Neurological Disorders and Stroke (NINDS) at the National Institutes of Health (NIH).
If enacted, the legislation would authorize $100 million over five years specifically for brain aneurysm research.
This investment could help researchers:
- Improve early detection and screening strategies.
- Better identify people who may be at risk.
- Develop more effective treatments.
- Expand our understanding of brain aneurysms.
- Advance prevention strategies that could save lives.
For too long, brain aneurysm research has not received the level of federal investment needed to address the devastating impact this disease can have on individuals and families. Ellie’s Law gives us an opportunity to change that, but it will take all of us.
Momentum Is Growing, But We Need Your Help
Support for Ellie’s Law continues to build in the 119th Congress. The legislation currently has:
- 6 bipartisan Senators serving as co-sponsors.
- 55 bipartisan Members of the House of Representatives serving as co-sponsors.
That progress matters, but we cannot stop here.
Every new co-sponsor strengthens the message that brain aneurysm research deserves federal attention and funding.
Your elected officials need to hear directly from you. Whether you are a survivor, caregiver, family member, healthcare professional, friend, or simply someone who believes in preventing this devastating disease, your voice can make a difference.
Three Ways You Can Take Action Today
1. Call Your Members of Congress
Calling your Senators and Representatives is one of the most direct ways to make your voice heard.
Ask them to co-sponsor Ellie’s Law and support increased federal funding for brain aneurysm research.
You don’t need to be an expert or have the perfect words. Simply explain why this issue matters to you and ask your elected officials to take action.
2. Send a Letter or Email
A personalized message can help your representatives understand the real-life impact of brain aneurysms.
Share your story if you are comfortable doing so. Tell them why research, early detection, better treatments, and prevention matter to you and your community.
Need help getting started? Use The Bee Foundation’s Advocacy letter template as a starting point, then make it personal.
3. Get Others Involved
Advocacy becomes more powerful when we act together.
Share information about Ellie’s Law with:
- Family members and friends.
- Brain aneurysm survivors and caregivers.
- Healthcare professionals.
- Community organizations.
- Social media networks.
- Anyone who believes more lives should be protected from brain aneurysms.
One person taking action can start a conversation. A community taking action can create momentum.
Make Your Voice Count
You don’t have to wait for an advocacy event or a special day to get involved. You can take action today.
Contact your Senators and Representatives. Ask them to support Ellie’s Law. Share why brain aneurysm research matters to you. Encourage someone else to do the same.
Then, keep going.
Every message adds to the growing chorus calling for greater investment in research and prevention.
Find Your Members of Congress
Visit Congress.gov to learn more about Ellie’s Law and track the legislation:
Together, We Can Turn Advocacy Into Action
The future of brain aneurysm research should not depend on chance. It should depend on our willingness to speak up, take action, and demand progress.
Help us move Ellie’s Law forward.
Call. Write. Share. Advocate.
Because every voice matters, and together, our voices can help create a future where fewer families experience the devastating impact of brain aneurysms.
