On Wednesday, June 24, 2026, 37 advocates from The Bee Foundation traveled to Capitol Hill with one shared purpose: to make sure brain aneurysm patients, survivors, caregivers, and families were heard.
Together, they held 51 meetings with members of Congress to advocate for Ellie’s Law. Ellie’s Law is a bipartisan, bicameral bill that would provide $20 million annually for five years – a total of $100 million dedicated to brain aneurysm research. This historic legislation would be the first federal law focused specifically on sustained funding for brain aneurysm prevention research, giving scientists the resources they need to better understand, detect, and ultimately prevent these devastating events before they happen.
Why does Ellie’s Law matter?
Because brain aneurysms affect far more people than most realize. One in every 50 people is unknowingly living with a brain aneurysm.
Think about what that means.
That’s an estimated 262,796 Pennsylvanians, 788,600 Californians, and 165,160 New Yorkers who may be living with a brain aneurysm without knowing it. Across the United States, approximately 6.5 million people have an unruptured brain aneurysm. Every year, about 30,000 brain aneurysms rupture. Half of those individuals will not survive.
For those who do survive, life is often forever changed. Many face long-term physical disabilities, cognitive challenges, vision problems, speech difficulties, or emotional trauma. Recovery can take months or years, and for some, the effects never fully go away.
Behind every statistic is a person, a parent, child, spouse, sibling, friend, or neighbor. Families who lose a loved one carry that loss with them every day. Survivors carry the memory of the moment their lives changed forever.
Research offers hope, but hope requires investment.
Why your voice matters
Advocacy doesn’t end when Capitol Hill Day is over.
While our advocates had the opportunity to share their stories in person, lawmakers need to hear from the people they represent every single day. One meeting can make an impression, but hundreds of phone calls, emails, and letters from constituents demonstrate that this issue matters to voters back home.
Members of Congress pay attention when their constituents speak up. Your story, your support, or even a simple request to co-sponsor a bill can help move legislation forward. You don’t have to be an expert or have a personal connection to brain aneurysms to make a difference, your voice adds to a growing chorus calling for better research, earlier detection, and more lives saved.
Right now, in the 119th Congress, 5 Senators and 49 Representatives have signed on as co-sponsors of Ellie’s Law. We’re grateful for their support, but we need many more lawmakers to join them before this bill can become law. Every new co-sponsor brings us one step closer to expanding lifesaving research and giving hope to millions of Americans.
Take action today
If you weren’t able to join us on Capitol Hill, you can still make a meaningful impact.
Please take a few minutes to call your Senators and Representative and ask them to co-sponsor Ellie’s Law (H.R. 2678 & S. 1609). You can also use our letter template to send a personalized message encouraging your legislators to support this critical legislation. It may only take a few minutes, but it could help change the future of brain aneurysm research, and save lives.
Thank you
Thank you to everyone who showed up, shared their stories, and advocated for Ellie’s Law; We could not do this without you all. A special thank you to Arnold & Porter for their continued partnership and unwavering support of brain aneurysm awareness and advocacy. Their generosity enables us to meet with congressional offices year after year, driving the fight for Ellie’s Law.
Visit congress.gov to learn more about the Bill in the House of Representatives and the Senate.
